Dementia. A word which evokes such a broad range of emotions, depending on your experience and understanding. Apparently it's the most feared illness in the over 50's. Yes those living with the disease tell us that it is possible to live well with dementia.
I've made these web pages to bring together some of the amazing resources that are available for people living with dementia, for their friends and families, health professionals and others, like me, who are interested to know more.
One thing that I have heard time and again is how people living with dementia and their families can feel isolated, as friends stop visiting and going out becomes more challenging.
So, my message is simple: if you know someone with dementia, continue to nurture your relationship with them. Equip yourself with knowledge and understanding from all the resources available and be a person who will make a positive contribution to their lives as they seek to live well with dementia.
I should add a disclaimer - I haven't read the content on all the pages of all the websites I provide links to! I don't necessarily endorse all the views and opinions expressed!
The amount of information available on the internet about dementia can be overwhelming so I have tried to categorise it in a way that will hopefully make it easy to navigate. But there are many sites that could fit into more than one category. If you know of a helpful resource that is not listed please contact me and I'll add it in. I have primarily listed sites within the UK.
I've made these web pages to bring together some of the amazing resources that are available for people living with dementia, for their friends and families, health professionals and others, like me, who are interested to know more.
One thing that I have heard time and again is how people living with dementia and their families can feel isolated, as friends stop visiting and going out becomes more challenging.
So, my message is simple: if you know someone with dementia, continue to nurture your relationship with them. Equip yourself with knowledge and understanding from all the resources available and be a person who will make a positive contribution to their lives as they seek to live well with dementia.
I should add a disclaimer - I haven't read the content on all the pages of all the websites I provide links to! I don't necessarily endorse all the views and opinions expressed!
The amount of information available on the internet about dementia can be overwhelming so I have tried to categorise it in a way that will hopefully make it easy to navigate. But there are many sites that could fit into more than one category. If you know of a helpful resource that is not listed please contact me and I'll add it in. I have primarily listed sites within the UK.
What is Dementia
Books
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Clicking on the link opposite will take you to a list of books about dementia on amazon.co.uk
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Recommended Reading
Where Memories Go by Sally Magnusson
Dementia: The one stop guide by June Andrews
Dementia: Frank and Lindas Story by Louise Morse
The End of Life Namaste Care Program for People with Dementia by Joyce Simard
Dancing with Dementia by Christine Bryden
Person Centred Dementia Care by Dawn Brooker and Isabelle Latham
Where Memories Go by Sally Magnusson
Dementia: The one stop guide by June Andrews
Dementia: Frank and Lindas Story by Louise Morse
The End of Life Namaste Care Program for People with Dementia by Joyce Simard
Dancing with Dementia by Christine Bryden
Person Centred Dementia Care by Dawn Brooker and Isabelle Latham
Living with dementia
Dementia Roadmap
Glorious opportunity - the website of Dr Jennifer Bute who is living with dementia
Living well with Dementia - NHS site
Resources from the Alzheimers Society on Living with Dementia
The Dementia and Engagement Empowerment Project
Dementia Adventure - Connecting people living with dementia with nature and a sense of adventure
Dementia Positive - celebrating the creativity, strengths & insights of people living with dementia
Stair Safety for a Person Living with Dementia
Glorious opportunity - the website of Dr Jennifer Bute who is living with dementia
Living well with Dementia - NHS site
Resources from the Alzheimers Society on Living with Dementia
The Dementia and Engagement Empowerment Project
Dementia Adventure - Connecting people living with dementia with nature and a sense of adventure
Dementia Positive - celebrating the creativity, strengths & insights of people living with dementia
Stair Safety for a Person Living with Dementia
Life stories
My Life Films - making free films for people living with dementia that tell their life-stories and celebrate memories
Life Story Network
Life Story work from Dementia UK
Life Story Network
Life Story work from Dementia UK
Enjoying Creativity and Activity
Search for activities in local areas with Dementia Connect from the Alzheimers Society
Playlist for Life
www.arts4dementia.org.uk/
www.creativedementia.org/
Dementia Pathfinders Circle Dance
www.livingwords.org.uk - an arts and literature organisation working with people with dementia
Positive Spin - Enabling people with dementia to cycle
www.resonatearts.org
Dementia Activities - NHS guide
Activities - A guide for carers of People with Dementia
Playlist for Life
www.arts4dementia.org.uk/
www.creativedementia.org/
Dementia Pathfinders Circle Dance
www.livingwords.org.uk - an arts and literature organisation working with people with dementia
Positive Spin - Enabling people with dementia to cycle
www.resonatearts.org
Dementia Activities - NHS guide
Activities - A guide for carers of People with Dementia
Support for Family and Carers
Dementia Conversations - opportunity to share experiences, gain knowledge and explore issues
Admiral Nurses - Dementia UK
Resources from the Alzheimers Society on Caring for a person with Dementia
www.tide.uk.net - Together in Dementia Everyday - A carers network
Dementia Challengers
Admiral Nurses - Dementia UK
Resources from the Alzheimers Society on Caring for a person with Dementia
www.tide.uk.net - Together in Dementia Everyday - A carers network
Dementia Challengers
Early Onset Dementia
Young Dementia UK
A fact sheet from the Alzheimers Society on Young Onset Dementia
Dementia Pathfinders Early Onset Dementia Support Group
A fact sheet from the Alzheimers Society on Young Onset Dementia
Dementia Pathfinders Early Onset Dementia Support Group
Visiting someone with dementia
A leaflet from Glorious Opportunity on visiting someone with dementia
Tips for visiting a loved one with dementia
Visiting a relative with dementia in a care home
Tips for visiting a loved one with dementia
Visiting a relative with dementia in a care home
Spiritual wellbeing
Of course, spiritual wellbeing goes beyond faith, but these resources focus on providing support to people living with dementia through their Christian faith:
Dementia and Spirituality - A Christian Perspective
Developing a dementia friendly church
"Being with God" a series of devotionals for people with dementia
Worshipping with Dementia - a book of devotions from the Pilgrims Friend Society
Worship and people with dementia
Dementia and Spirituality - A Christian Perspective
Developing a dementia friendly church
"Being with God" a series of devotionals for people with dementia
Worshipping with Dementia - a book of devotions from the Pilgrims Friend Society
Worship and people with dementia
Care and resources for people in the advanced stages of dementia
Information from the Alzheimers Society on the later stages of dementia
The Namaste Toolkit - to help care homes set up the Namaste programme of sensory care for people with advanced dementia
Namaste Trial UK
Dental care for people living with dementia
Choosing a Care Home
Volunteers to spend time and build friendship care home residents - Care Home Friends
Information from the Alzheimers Society on selecting a care home
Information from Age UK on care homes, including paying for care
Information from Independent Age on choosing a care home
Elderly Accommodation Counsel - a charity helping older people make informed choices about housing
Housing Care and Advice - has a huge searchable database of care homes nationally
Dementia Care Matters - a leading dementia care culture change organisation
Information from the Alzheimers Society on selecting a care home
Information from Age UK on care homes, including paying for care
Information from Independent Age on choosing a care home
Elderly Accommodation Counsel - a charity helping older people make informed choices about housing
Housing Care and Advice - has a huge searchable database of care homes nationally
Dementia Care Matters - a leading dementia care culture change organisation
Dementia Training and Education
Dementia Pathfinders - delivering education and learning for people working in the dementia care field
Free Dementia e-learning course from scie
University of Bradford School of Dementia Studies
University of Stirling Dementia Centre
University of Worcester Association for Dementia Studies
UCL Dementia Research Centre
The Journal of Dementia Care
Health Education England Dementia e-learning
Free Dementia e-learning course from scie
University of Bradford School of Dementia Studies
University of Stirling Dementia Centre
University of Worcester Association for Dementia Studies
UCL Dementia Research Centre
The Journal of Dementia Care
Health Education England Dementia e-learning
Legal Matters
Pathways through Dementia - free, accurate legal and financial information to support people living with dementia.
Information on legal issues from the Dementia Challengers website
Information on legal issues from the Dementia Challengers website
Dementia Care Products
Unforgettable
ReMindMeCare
www.active-minds.co.uk
Just checking - an unintrusive activity monitoring system using heat sensors
ReMindMeCare
www.active-minds.co.uk
Just checking - an unintrusive activity monitoring system using heat sensors
Preventing Dementia
Public Health England: Mid life approaches to reduce dementia risk
Can dementia be prevented? Advice from the NHS
How to reduce your risk of Dementia from the Alzheimers Society
Can dementia be prevented? Advice from the NHS
How to reduce your risk of Dementia from the Alzheimers Society
Research
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