Dementia. A word which evokes such a broad range of emotions, depending on your experience and understanding. Apparently it's the most feared illness in the over 50's. Yes those living with the disease tell us that it is possible to live well with dementia.
I've made these web pages to bring together some of the amazing resources that are available for people living with dementia, for their friends and families, health professionals and others, like me, who are interested to know more.
One thing that I have heard time and again is how people living with dementia and their families can feel isolated, as friends stop visiting and going out becomes more challenging.
So, my message is simple: if you know someone with dementia, continue to nurture your relationship with them. Equip yourself with knowledge and understanding from all the resources available and be a person who will make a positive contribution to their lives as they seek to live well with dementia.
I should add a disclaimer - I haven't read the content on all the pages of all the websites I provide links to! I don't necessarily endorse all the views and opinions expressed!
The amount of information available on the internet about dementia can be overwhelming so I have tried to categorise it in a way that will hopefully make it easy to navigate. But there are many sites that could fit into more than one category. If you know of a helpful resource that is not listed please contact me and I'll add it in. I have primarily listed sites within the UK.
We have started to produce our own resources to support people living with dementia and their loved ones. These are shown in the first section below, followed by links to other resources.
I've made these web pages to bring together some of the amazing resources that are available for people living with dementia, for their friends and families, health professionals and others, like me, who are interested to know more.
One thing that I have heard time and again is how people living with dementia and their families can feel isolated, as friends stop visiting and going out becomes more challenging.
So, my message is simple: if you know someone with dementia, continue to nurture your relationship with them. Equip yourself with knowledge and understanding from all the resources available and be a person who will make a positive contribution to their lives as they seek to live well with dementia.
I should add a disclaimer - I haven't read the content on all the pages of all the websites I provide links to! I don't necessarily endorse all the views and opinions expressed!
The amount of information available on the internet about dementia can be overwhelming so I have tried to categorise it in a way that will hopefully make it easy to navigate. But there are many sites that could fit into more than one category. If you know of a helpful resource that is not listed please contact me and I'll add it in. I have primarily listed sites within the UK.
We have started to produce our own resources to support people living with dementia and their loved ones. These are shown in the first section below, followed by links to other resources.
The Making Moments Series
A short booklet with tips and techniques for enjoying quality time with a loved one with dementia
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A list of recommended poems that your loved one with dementia might enjoy, with online links to each poem.
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Christian devotions to enjoy together with your loved one living with dementia.
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You will be directed to a webpage where you can download them immediately.
Alternatively, if you would prefer to purchase a hard copy, please see our Resources page.
What is Dementia?
Living with Dementia
Video: Living with Dementia SCIE
Video: What dementia means to me
Living well with Dementia - NHS site
Resources from the Alzheimers Society on Living with Dementia
Resources from Trusted Care about Dementia
The Dementia and Engagement Empowerment Project
Dementia Adventure - Connecting people living with dementia with nature and a sense of adventure
Dementia Positive - celebrating the creativity, strengths & insights of people living with dementia
Dementia Roadmap
Video: What dementia means to me
Living well with Dementia - NHS site
Resources from the Alzheimers Society on Living with Dementia
Resources from Trusted Care about Dementia
The Dementia and Engagement Empowerment Project
Dementia Adventure - Connecting people living with dementia with nature and a sense of adventure
Dementia Positive - celebrating the creativity, strengths & insights of people living with dementia
Dementia Roadmap
Life Story Work
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Helping someone record their life story is a wonderful activity to do together, and helps facilitate reminiscence. It is also a very useful record of an individual's life that can help carers to understand and know your loved one, should they ever move into a care home.
As well as recording facts, make a note of sensory history as well - what music, smells, tastes, etc does your loved one enjoy? |
Enjoying Creativity and Activity
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Search for activities in local areas with Dementia Connect from the Alzheimers Society Playlist for Life www.livingwords.org.uk - an arts and literature organisation working with people with dementia www.resonatearts.org Dementia Activities - NHS guide Activities - A guide for carers of People with Dementia |
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Support for Family and Carers
Carers Connected - an opportunity for carers to chat and pray together online
Admiral Nurses - Dementia UK
Resources from the Alzheimers Society on Caring for a person with Dementia
www.tide.uk.net - Together in Dementia Everyday - A carers network
How to care for someone with dementia at home - resource from The Fremantle Trust
Admiral Nurses - Dementia UK
Resources from the Alzheimers Society on Caring for a person with Dementia
www.tide.uk.net - Together in Dementia Everyday - A carers network
How to care for someone with dementia at home - resource from The Fremantle Trust
Early Onset Dementia
Visiting someone with dementia
Spiritual Wellbeing
Of course, spiritual wellbeing goes beyond faith, but these resources focus on providing support to people living with dementia through their Christian faith:
We Are... Christian Devotions to share with a loved one with dementia
Worshipping with Dementia - a book of devotions from the Pilgrims Friend Society
We Are... Christian Devotions to share with a loved one with dementia
Worshipping with Dementia - a book of devotions from the Pilgrims Friend Society
Care and resources for people in the advanced stages of dementia
We love the Namaste programme of sensory care for people living with dementia - we think every care home should run it. If you want to know more about what Namaste is and the difference it makes - watch the video below.
Choosing a Care Home
Video: Living in a care home - a positive outcome for someone with dementia
Volunteers to spend time and build friendship care home residents - Care Home Friends
Information from the Alzheimers Society on selecting a care home
Information from Age UK on care homes, including paying for care
Information from Independent Age on choosing a care home
Housing Care and Advice - has a huge searchable database of care homes nationally
Volunteers to spend time and build friendship care home residents - Care Home Friends
Information from the Alzheimers Society on selecting a care home
Information from Age UK on care homes, including paying for care
Information from Independent Age on choosing a care home
Housing Care and Advice - has a huge searchable database of care homes nationally
Dementia Training and Education
Free Dementia e-learning course from scie
Dementia Pathfinders - delivering education and learning for people working in the dementia care field
University of Bradford School of Dementia Studies
University of Stirling Dementia Centre
University of Worcester Association for Dementia Studies
UCL Dementia Research Centre
Health Education England Dementia e-learning
Dementia Pathfinders - delivering education and learning for people working in the dementia care field
University of Bradford School of Dementia Studies
University of Stirling Dementia Centre
University of Worcester Association for Dementia Studies
UCL Dementia Research Centre
Health Education England Dementia e-learning
Legal Matters
Dementia Care Products
Preventing Dementia
Conversations with Carers
Books
Recommended Reading
Living with Alzheimers: A Love Story by Robin Thomson
Where Memories Go by Sally Magnusson
Dementia: Living in the Memories of God by John Swinton
Dementia from the Inside by Dr Jennifer Bute with Louise Morse
Dementia: The one stop guide by June Andrews
Dementia: Frank and Lindas Story by Louise Morse
The End of Life Namaste Care Program for People with Dementia by Joyce Simard
Dancing with Dementia by Christine Bryden
Person Centred Dementia Care by Dawn Brooker and Isabelle Latham
Living with Alzheimers: A Love Story by Robin Thomson
Where Memories Go by Sally Magnusson
Dementia: Living in the Memories of God by John Swinton
Dementia from the Inside by Dr Jennifer Bute with Louise Morse
Dementia: The one stop guide by June Andrews
Dementia: Frank and Lindas Story by Louise Morse
The End of Life Namaste Care Program for People with Dementia by Joyce Simard
Dancing with Dementia by Christine Bryden
Person Centred Dementia Care by Dawn Brooker and Isabelle Latham
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